BOOK - Chapter 6
Chapter 6
The next day
was Andrew's first radiation
appointment. We had decided to leave Ryan and Ari with my mom so that Harry and I could give Andrew
our undivided attention. We arrived at
the large Cancer Clinic in Vancouver and took the elevator
upstairs to the Radiation Department. A
long hallway stretched to the left with a sign hanging from the ceiling that
read "250 KV". That was the
designation for the machine which could produce 250 kilovolts of
radiation. It was one of the less powerful
machines and looked innocuous enough, but my spirit was fearful as a technician
approached us.
"Are you Mr. and Mrs. Schroeder?"
she asked.
"Yes," we both answered at once. "I'm Dr. Godard," she introduced herself. "I understand you're not sure whether
you want to go ahead with radiation today."
Harry
and I glanced at each other a little surprised that our concerns were being
addressed by every sector of the medical establishment. As we hesitated over what to say, she went
on.
"It can certainly be
postponed," she continued. "You shouldn't feel pressured."
"What happens if we choose not
to do the radiation immediately?" Harry asked.
"The testicular radiation can
be added to the radiation your son will get later just before his
transplant. It makes no difference to
us, or to his prognosis. However, if he
has the radiation in separate batches it will give his skin time to heal up in
between." Again, Harry and I both began to speak, then stopped.
Dr.
Goddard looked at us searchingly.
"Would you like a little time
to think it over?" she asked. "You can come back tomorrow if you
like." The thought of having driven
all this way in vain bothered me and yet the door to confusion had now been
reopened.
"Can we have 5 minutes right
now to make up our minds?" asked
Harry.
"Certainly," was her
gracious reply. "Feel free to use
this little room and let me know when you've decided. It’s no problem to reschedule his
appointments."
Leaving Andrew
with some toys in the waiting room we entered the small treatment room and
closed the door behind us. Harry felt
that having come this far and knowing Andrew would have to have this radiation
anyways we should probably go ahead with it.
I nodded my head.
"Let's just pray before we go
back out there," Harry
suggested. As we lifted our voices in
supplication for our son, we were reassured that friends at home were praying
with us including our friend Dave who had promised to fast and pray for us that
day. Later he told us that at the exact
moment when we were getting our peace,
he was receiving confirmation that our indecision was over and that we
would be alright.
Back at the cancer clinic we
re-entered the hallway to be met by a pretty, dark-haired technician who introduced
herself as Alex and asked us to follow her.
In the treatment room Harry
lifted up Andrew onto the bed where a
few measurements had to be taken before positioning the radiation machine. Before we left the room Alex
put a beautiful plush white teddy bear into Andrew's
hands. It had a red satin bow around its
neck that contrasted with the bright whiteness of the soft bear.
"Andrew,
Teddy here is going to stay with you
in this room while the machine takes pictures of you. Can you lie really still all by
yourself?" Alex
asked.
Andrew
nodded his head seriously. He was always
very quiet and very good when in the presence of medical staff.
"Would you like to hold Teddy?"
she asked.
A nod was his only response.
"Teddy,
this little boy is Andrew and he would
like to be friends with you. How would
you like to lie on the bed beside him?"
Teddy nodded vigorously.
The two were settled down together
and the rest of us all left the room.
The heavy white door clicked shut and I felt tears pricking at my
eyelids. How could we do this to our little
boy? It broke my heart to think that we
were forever closing the door on Andrew's
ability to have children. He had been
such a blessing to us. Now he might
never experience the blessing of fatherhood himself. Through my hurting thoughts I heard someone
speaking to me.
"Mrs. Schroeder, you can talk
to Andrew over the intercom if you like," Alex suggested kindly. I sat down in the office chair and pressed
the intercom button.
"Hi, Andrew,
can you hear me?" I asked.
"Yes," came a tiny faraway
voice.
"Isn't this fun to talk to each
other through the walls. How's Teddy by the way?" I went on.
"He's okay."
"Have you thought of a name for
him yet?" I asked.
"No."
"How about Snowflake?"
"No."
"Did you see all the stickers
on the machine?"
"Yes." I was running out of steam.
"Tomorrow I'll bring a book and
read you a story," I promised. With relief I saw the red light on the
monitor go out and the treatment was finally over. After saying goodbye to Teddy
and receiving some flashy stickers for being a good boy, Andrew was allowed to leave and we headed for home. It had gone better
than we'd expected and slowly our anxiety about radiation settled down. Little did we know how painful the side
effects would be.
Two more days of radiation followed
during which Andrew began to complain of a mouth sore and I began to feel sick
with the flu. By Friday I was becoming
more and more fatigued, my food was going straight through me and Andrew seemed unusually irritable.
Since we had invited a couple over
for Friday night Mom and Dad suggested that the three boys stay at their
house. I accepted the offer, wanting to
have a quiet visit with our company.
They were complete strangers to us but had been through a similar
illness with their three year old daughter and were willing to share their
experience with us.
The boys went happily to Grandma's
and I put on the coffee for company.
When Les and June arrived we sensed
that they were still grieving the loss of their daughter and that this visit
was difficult for them. It was less than
a month since their little daughter had suddenly died and their wounds were
still very fresh. With very little
preamble they bravely launched into their story.
Little Britney had been diagnosed
with an aggressive form of leukemia with very limited time left to treat
her. The only medical option was a
transplant with her 6 month old baby sister as donor. The parents were horrified when they
researched all that a transplant entailed for the donor. The baby was too young to endure the
procedure. Les became zealously
consumed with the need to research the disease and uncover every possible
treatment. As a result they had relocated
to another city on the other side of the country to seek the help of a
reknowned naturopath. He attained a
measure of success in restoring Britney to health briefly, however, the
reprieve was short-lived as she passed away suddenly while still being treated.
As Les and June
told us their story we were amazed at their vast knowledge of cancer and
alternative remedies. They had a
comprehensive grasp of both conventional medicine and natural remedies. They offered us literature to read as well as
the phone number of the naturopath they had used. We talked well into the night asking
questions and absorbing information from this young, grieving couple. We could not know the emotional toll this
visit had on them, causing them to relive the last tragic months of their
daughter's life so soon after her death, but we saw the grace of God at work in
their lives and stood in awe of their peaceful acceptance of His will in their
lives.
The next day was a trying one for
me. I had been awake most of the night as
I replayed everything that had been said the night before. Once again doubts began to creep into my mind
regarding the transplant. We could still
avoid it and choose the less painful route with natural medicine. But would it be less painful?
Meanwhile I took the opportunity
that morning to see my general practitioner without the children. Dr. Pauls
warmly welcomed me and eagerly asked about Andrew. I told him that we were facing more chemo,
radiation,and a transplant. I did not
mention my inner turmoil but added that the transplant was only giving us a
30-40% chance of success.
Dr. Pauls
responded with words that, unbeknownst to him, carried great significance for
me, "You can have the transplant and God might heal him. Or, He might not." The thought came to me that here again was a
member of the medical profession giving glory to God. Was this God's way of directing us? The much slandered medical profession was proving
to be far more God-honoring that we had anticipated.
Dr.
Pauls finished writing out a prescription for me and as he handed it to me said
sorrowfully, "I could just cry."
He turned away abruptly and reached for a kleenex, his shoulders heaving
silently.
"You're going
to get me started if you do that,"
I said fumbling for my own tissue.
"We'll be okay. We know God
is with us and He's in control," I added.
Dr. Pauls nodded.
"Can I give
you a hug?" he asked.
"Absolutely. I need all the hugs I can get," I
replied.
I left his office
with a lighter heart and drove to Mom's, unaware that my words would soon be
tested.
Ari came running to
greet me with a hug while Mom met me with worried eyes.
"Andrew hasn't eaten a thing since last night,"
she said in a low voice. "He's
just been lying on the couch all morning.
He keeps complaining of a sore mouth." I pulled off my coat and hurried over to the
couch.
"Hi,
Andy-bandy! How're you feeling?"
"My mouth-sore
hurts," he mumbled softly.
"Is that why
you're not eating?" I asked. "Or is it because you're not hungry?" He shrugged his shoulders listlessly in
response.
"What would
you like for lunch, Andrew?" coaxed Grandma. "Can I make you a hot dog?"
His eyes brightened
briefly as he nodded his head. While mom
got the hot dogs ready I set the table and told her of my visit to the
doctor. Calling the children to the
table I went to Andrew's side.
"Can you get
up to come to the table, honey?" I
asked. He shook his head lethargically.
"Maybe I
better take a look at that mouth,"
I suggested. He obediently opened
his mouth a little. "Can you open a
little wider?" I asked. He started to cry. "Ok. We'll get a flashlight,
honey," I soothed him.
Grandpa, who had
come in for lunch, quickly brought me a flashlight.
I was shocked by
what I saw in Andrew's mouth. The insides of his cheek were bright red and
inflamed. At the base of the gums was a
white canker sore that had already eaten away a deep hole into the flesh.
"You're not
going to be able to eat are you?" I
asked Andrew. He shook his head.
"Does it hurt
to talk?" I questioned. He nodded.
By now my lightheartedness had completely dissipated and the familiar
gnawing of fear started up in the pit of my stomach. I choked down some lunch wondering if the
churning monster of fear would forever stalk me. But then courage came to me as I remembered
Les and June and their strong
determination to make informed decisions for their daughter. In the inspiration of that moment I tried to
follow their example by calling up a local herbalist. I wanted help and I wanted it right now. The cancer clinic was closed for the weekend
and I had nowhere else to turn.
The herbalist was
understanding and helpful, suggesting some remedies that I could begin
immediately. We also made an
appointment for a consultation with her.
I dashed off to the nearest health store and bought a number of bottles,
returning to Mom's house with renewed hope.
Andrew refused to swallow any
of them. The pain in his mouth was so
great that he could no longer open his mouth to talk. I was frantic.
Grabbing the phone
once again I called my sister Liz. As a registered nurse, she was the medical
expert in our family and the one we all went to for advice. She listened quietly as I poured out my fears
and then in her calm way asked if the hospital had provided me with anything to
counteract the effects of radiation. My
mind stopped short. How was that
connected with Andrew's symptoms?
"I've been
given some bottles of medicated mouthwash but I think he's past getting any help
from them," I replied.
"Keep using
those, Marilyn, I'm sure they will help,"
she insisted. I sighed as we hung
up, wondering how I would get Andrew
to open his mouth never mind trying to swish and rinse it out.
The next day was
Sunday and after church everyone met at Mom and Dad's for a big family
dinner. When Liz
and her family arrived I drew her into a quiet corner where we reviewed Andrew's situation.
She went to Andrew, who was already lying on the couch, and put her arm gently around him. Talking softly she got him to open his mouth
partially while I held the flashlight.
After a quick look inside she too looked worried and asked whether we
were using the medicated mouth wash. I
decided to make the best of this opportunity hoping that someone else's coaxing
would help Andrew to submit to a mouth
rinse. Liz
helped me draw Andrew to the sink
while I readied the mouthwash.
Grandparents, cousins, aunts and uncles came to surround Andrew with their support and encouragement. To please his crowd of onlookers Andrew swished and spit while we cheered him on.
As soon as the
rinse was done he collapsed back onto the couch. However, to my surprise he admitted that his
mouth felt a little better. By evening,
after a second mouth rinse he was able to sip a little juice.
Unfortunately
things didn't improve much over the next day and I began to feel stressed
out. My stomach was still not digesting
food properly, our sleep was always being interrupted with Ari crawling into
bed with us, and during the day I still had to keep homeschooling the boys as
well as continue the daily household chores.
Added to this was the pressure of remembering all of Andrew's medications, organizing our schedule around
his many appointments, and trying to read yet one more health book in my
'spare' time. The frequent trips to Vancouver
required constant packing and unpacking since we always went the night before
to avoid the horrendous morning rush-hour traffic. Now with Andrew
experiencing unfamiliar side effects I was seized with new worries.
Two days of
not eating and only sipping juices from a straw made him hungrier and hungrier. I
prepared his favourite foods as he waited hopefully, and then with his first
tiny bite all appetite fled in the face of burning pain.
For once I was
relieved to be going to Children's Hospital and could hardly wait for his next
appointment. In the morning I wakened
early to have my quiet time.
Rubbing my eyes sleepily I
opened my One Year Bible. Skimming over
the Old Testament passage for the day I hurried to the New Testament section
which was Matthew 14:13-36.
"When Jesus heard what had happened, he withdrew by boat
privately to a solitary place."
A sigh escaped my
lips as my spirit joined with Christ in his
sadness. He had just received word of
his cousin John's gruesome death and in the grief of that moment He wanted to
be alone. I imagined that He wanted to
pray and perhaps weep, but my imagination was left wondering because by the
time he reached land a large crowd was already there to greet Him. No time to pray and weep. Instead He healed the people, then he fed
them with five loaves and two fish, and finally sent off his weary disciples
while He dismissed the crowd. At last
there was time to pray. But the needs of
others came calling once again as He noticed that the disciples' ship was being
buffeted by wind and waves. Off He went
to attend to their needs. His compassion
and servant-spirit never quit. Nowhere
could I find a shred of resentment or even discouragement in Jesus during this time of obvious sorrow in His
life. He took moments of solitude where
He could but never ignored the needs of others as they intruded upon Him.
Fully awake by now,
I prayed for a pure heart and resolved to look to Christ
for my strength, and to my husband for help in ordering my priorities.
After dropping off Ryan and Ari at Mom's, Harry,
Andrew and I finally set off for Vancouver.
Our first stop was
the cancer clinic for another radiation treatment. Alex,
the technician, greeted us warmly.
"Teddy sure
missed you over the weekend, Andrew,"
she said. Andrew
smiled weakly as he quietly climbed onto the bed. Alex
gave him Teddy to hold while the
machines were readied above him. As Alex and I left the room she remarked on his
paleness.
"He's had a
sore mouth all weekend," I told
her. "It's kept him from
eating." She nodded sympathetically
as she turned on the intercom for me to communicate with Andrew. When I looked up from my TV monitor at the
end of his treatment I noticed that Alex
was gone. Another technician turned off
the radiation machine and together we went in to help Andrew
get dressed. Teddy
was placed back on the shelf until tomorrow and Andrew
picked another sticker for his record chart.
We put on our coats, met Harry
in the waiting room and headed for the elevator. To our surprise we saw Alex
there waiting for us. In her hand was a
large present for Andrew.
"You need a
little something to cheer you up,"
she smiled handing a kit of play dough to Andrew.
"Thank
you," Andrew whispered. I thought I
saw tears in her eyes but she quickly waved goodbye and walked away. This was not the first gift he had received
from the radiation nurses, but it was the biggest by far, and it warmed my
heart perhaps even more than Andrew's. Alex
had once told me that she, too, had a little boy Andrew's
age and I suspected that these gifts were prompted by a mother's heart.
When we arrived at
Children's the usual blood test was to be taken. Unfortunately the blood would not draw
properly and so Andrew's VAD had to be
poked twice. While we waited for the
results I discussed his mouth sores with the nurse who instructed us to
continue diligently using the medicated mouth rinses and to step up the mouth
care to every two hours.
Three hours later
we finally received the blood results.
All his blood counts had dropped radically and we were informed that he
would require a red blood cell transfusion the next day.
From the hospital
we drove to the naturopath's office where we waited another 45 minutes to see
him. It was our second visit and I
experienced a growing feeling of uneasiness.
When I had first contacted him on the phone he had responded with
aloofness and what seemed like disinterest.
"I can't heal
everybody," he had told me brusquely.
"We all have to die sooner or later."
At our first
appointment he had been a little warmer and strangely enough, encouraged us to
take the course that the medical doctors were advising us to follow. He indicated that his role would be to simply
supplement the conventional treatments with his herbal remedies. Now, during our wait I observed the
literature in his waiting room regarding many alternative remedies that he
offered, and it disturbed me even further.
As the three of us entered his consultation office he appeared jovial
and conversational. He spent a fair bit
of time discussing his other patients with us and virtually ignored Andrew. As Harry tried to redirect the conversation back to our
son the doctor began a litany of do's and don'ts for us to follow. No dairy products, no white flour, no sugar,
and on it went. Somewhere in the list a
question was raised in Harry's mind.
"Excuse me,
sir, but you just said no dairy products and yet at the same time Andrew is allowed yogurt? Is yogurt not a dairy product?"
For some
unexplainable reason the naturopath exploded.
"Did you hear
me say yogurt is a dairy product?"
he responded with unusual energy.
"I never said yogurt is a dairy product! Do you think yogurt comes from a cow like
milk comes from a cow and cheese comes from a cow?! Let me tell you where yogurt comes
from." With loud, condescending
deliberation he then proceeded to tell us more than we ever wanted to know
about bacterial feces and the ensuing result of yogurt. Suffice it to say, it was a long time before
I was able to enjoy yogurt again. It was
also one of the last times we went to see that doctor.
Reaching Abbotsford
we stopped in at Grandma's to pick up the other two boys and found a hot supper
waiting for us. We gratefully ate,
although Andrew barely touched it, and then carried on home. While Harry
got the boys ready for bed I packed a small overnight bag in anticipation of
what the next day might bring. Something
inside me felt that Andrew's serious
mouth sores would finally merit some serious attention and that would
undoubtedly require a stay in the hospital.
Once the boys were
kissed and prayed with and tucked in, Harry
and I sprawled out in our sitting room to review the days' events.
"It seems to
me that we've got to continue seeking God and His Word rather than running
after natural remedies," was Harry's comment after we replayed the yogurt
episode. "Look at how Les and June spent precious time researching their daughter's
disease and trying radical remedies only to lose her anyways. Now that knowledge is useless. And it certainly won't help little Brittny
anymore. I would rather spend these
months digging into God's word and making memories with Andrew than sitting in
a library in Vancouver pouring over medical books."
I nodded in
heartfelt agreement. God was already
confirming my priorities through my husband and the tension I felt from the visit with the naturopath was rapidly dissipating.
We would trust in the Lord our God and no other.